Graphic Photos: Baby born with Incurable Disease that causes Skin to Peel if Touched

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Graphic Photos: Baby born with Incurable Disease that causes Skin to Peel if TouchedIn a sad case, a baby boy has been diagnosed with a rare incurable disease which makes his skin peel off when touched.

Baby Kaheel Clark-Smith was diagnosed at birth with Epidermolyosis Bullosa (EB) after he was born with small blisters on his arm.

However, it was dismissed as a mild case until it became an extreme situation resulting in blisters and about 60% loss of his skin. Then doctors re-diagnosed it as a worst case of the disease.

Graphic Photos: Baby born with Incurable Disease that causes Skin to Fall off if TouchedAccording to Khaleel’s aunt Brandi Smith, Khaheel’s parents has to do all the research at home giving the little information they had on the rare form of disease.

She said, ‘This is their first child and they are so overwhelmed and broken. We found out the day he was born and didn’t know anything about it. We had to do all the research at home.’

Talking about her son, first time mom Brandi said, “We found out this was the ‘worst disease you’ve never heard of’ and we were so heartbroken. Even a cuddle or a kiss can cause his skin to blister. The doctors gave us false hope because he was eating and all his vital signs were fine. Then he had a bad breakout and he was admitted to NICU on Jan 4th.  “We just got back the results from the biopsies and have been told it’s the worst type of EB.”

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Graphic Photos: Baby born with Incurable Disease that causes Skin to Fall off if TouchedBrandi started a GoFundMe page to help raise $30,000 for the medical flight to get the baby to specialist EB centre in Ohio, for the expensive special clothing and bandage needed to wrap Khaleel since the hospital where their son was born in Seattle, Washington has very little experience in handling such case.

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22 COMMENTS

  1. One of the joys of every parent is in being able to hold their new baby close. Sadly this woman cannot but i will advice u to take the baby for a medical check up

  2. O god is wandeful ,concerning incurable of this illness god is kunfayakun.she will heal in d name Allah.

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